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Sunday 31 March 2013

Decisions Decisions

Well I have had a few days off of blogging but I am back refreshed and ready to go again. The attacks (touch wood) seem to have calmed down I have not had one for a few days and today is the first day I have felt like my old self for a while. I went to my specialist appointment on Thursday and was poked and prodded about and subjected to a whole lot of tests. My hearing and balance have deteriorated which was no surprise to me. As I suspected I have to go back and be fitted for hearing aids on both ears, I have to go back for more in depth balance tests to see if I am a candidate for the gentamicin treatment, I also have to go back for a pre op assessment, and finally day surgery to have the grommit replaced in my left ear which fell out over a year ago. He also doubled my meds. Whilst none of this came as a surprise to me it has taken a while to digest and I have had talks with the children, Lee, and my family about whether or not to have the gentamicin treatment as it comes with a pretty hefty side effect. There is a good chance if I have the treatment it will destroy the little hearing I have left and affect my balance however it may help with the vertigo attacks. I asked the surgeon outright what the chances of success are and he said based on what he has seen of me he thinks it would be 50/50. So a lot to take in and consider I still have not made a decision but I have a few weeks before I need to so lots more conversations with the family are coming my way I feel.

We had visitors on Saturday my family came down from London for the day and it was so nice to see them all. Even more so as my little sister and her girlfriend have just got engaged and I have been asked to be a bridesmaid. We spent the whole day having a good old catch up and a good old giggle which was lovely. My step dad mentioned how tired I look and how it breaks his heart that someone as young as me is having to live with this debilitating disease. I just gave him a hug and assured him that yes it is hard but its not something that is going to kill me and I have to just suck it up and get on with it. I made a lovely coffee cake for my mum and she loved it wrapping it in foil to take home with her. It was like the battle of Britain just to get her to leave a little slice here for me lol.





I also got left lots of yummy scrummy food all for free thanks to my mummies fussy food ways. I offered everyone ham and cheese rolls and cake for lunch but that was not good enough so they bought their own food with them for the day. Now this would probably offend a lot of people but I don't let it bother me any more as whatever they don't eat gets left here for us to use. As a result I got the following free food a big box of cocktail sausages, a £3 packet of deli ham, 6 large muffins, a bakers loaf of bread, half a pack of Easter cakes.

I have been working hard on my homemade prezzies over the last few days and have finally finished. The bestie has a jewellery set




The next door neighbor has a baby blanket and 3 wash mitts



And DGD has a toiletry set





All have been wrapped and ready to give as well as 4 cards made (sorry forgot to take a pic). So that's me finished with prezzie making for a few months so I have started making scarfs for xmas prezzies. I am a very basic knitter but love it as it is a real stress buster for me so the more stressed I am the more knitting I get done :) anyway I am off to do some knitting but its just for fun today as its a very good day and no stress to work through.

Much Love
Claire xx xx xx

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